Hey Everybody,
Well we are finally back home. Corin called me Thursday afternoon and asked me to pick her and Amarie up. What a blessing. We have been home for 5 days now and it is such a relief to have everyone back home now. The dogs also came home Friday from the Pearson's. Amarie is still on a feeding tube and she has to be hooked up to a sleep-apnea monitor while we are not holding her. Other than that she is doing great. She is on several medications right now. One is for seizures, the other is for stomach reflux, and the other is to wean her off of the pain killers she was on. We still have to follow up with the doctors over the next few months. We are still concerned about the blood clot in her frontal lobe(although the clot did get smaller on her last CAT scan), and if we are carriers of Treacher Collins syndrome. If we are carriers then there is a 50 50 chance that if we have more children they will also have Treacher Collins. We are focusing on the bright side right now however. We are just glad to be home and together. Thank you all for your prayers and encouraging notes. God bless.
-Jason Orean
Monday, May 11, 2009
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