Sorry it has been such a long time since we have posted any updates. Life is crazy!!! Amarie is doing well with her new tube in her tummy. She gets her hearing aids in two weeks...we are looking forward to the look on her face when she hears us better! She is getting bigger (slowly but surely..she is still shrimpy! She is 4 months old and can still wear newborn size). She weighed 9 pounds 8 ounces this week at her 4 month checkup. She is keeping us busy with all of her doctor visits (we have 8 appointments this month and its about like that every month). Its a crazy life being her full time mom/nurse/secretary! Plus, life has been a little crazy this week because Jason has swine flu. He has been out of commission since monday and has to stay away from everyone for another 48 hours. He is doing much better now but had a really high fever. The doctors put us all on tamiflu so I'm praying that amarie won't get sick!
Another update is about the genetic testing. A few months ago Amarie had genetic testing sent to Johns Hopkins to confirm her Treacher Collins. Well...we have learned to expect the unexpected with her! The geneticist knows that she has treacher collins based on her features but the testing was a mystery. Johns Hopkins is stumped. They have never seen the kind of mutation that she has before. So they did genetic testing on us and it turns out that I am a carrier. So we were really disappointed because that will make having more biological kids difficult. We have a strong chance of having another child with treacher collins. While we are so in love with our beautiful amarie, we don't think we could handle her and a child that could be more severe (complete deafness or trach dependent). The geneticist offered us several options for future pregnancies: an amniocentesis to see if that baby had treacher collins so if we wanted to terminate the pregnancy; to undergo genetic testing on multiple fertilized embryos and then implant the ones without the mutation; or to use an egg donor. Believing that life is precious and that it begins at conception we don't want to go with the first two options. We will probably look into adoption. We are trusting God's plan for our lives and know that He knows exactly who is supposed to be in our family. We are relying on Him every day because there is no way we can do any of this on our own! I am going to have to cut back my hours at work to take care of Amarie so we are excited to see how God provides. Its so funny that after we have seen God's faithfulness to us over and over again that last few months I forget that and still get scared. God says to "test him and see if he will not throw open the floodgates of heaven and pour out so much blessing that you will not have room for it."
Sorry this was so much to read..I had a lot to fill everyone in on! Love, Corin
3 comments:
corin, i'm really touched by your post. i'm really encouraged by your and jason's attitudes about everything, but the genetic test is so hard to hear. i hope you are able to adopt if that's what God leads you towards. remember day-dreaming about an orphanage in during small-group in your basement? :) i pray that your home is full of sweet, loving babies in just the way it should be. thank you for the blessing you're being in your actions.
love always,
lauren
I fully agree with Lauren's comment. I know that this news is really hard to bear, but God will bless your faithfulness in some way or another. What was so puzzling about Amarie's bloodwork, just that the specific mutation was unknown before?
Corin, I was very touched by your last post and will certainly be praying for your precious little daughter. What a blessing that God has placed her in a family where her mother is a very loving, capable nurse to care for her specific needs. God is faithful and He will not let you down. Memorize Isaiah 41:10 and recall it whenever you feel afraid.
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