Update

We are still at Scottish Rite Children's Hospital and will be here at least until Wednesday. Amarie is doing well...much better now that she is getting tube feedings. She is on a monitor to make sure her breathing is ok and is getting fed breast milk through a tube in her nose. We are all doing well just sleep deprived! She was seen by two more doctors today- a craniofacial specialist and an ear, nose, throat doctor. The biggest issue that is causing her feeding and breathing problems is her small jaw. They are going to do something called a sleep study on Monday where they monitor her breathing while she sleeps. Since her jaw is small her tongue can fall back in her throat and block her airway. If she does ok on the sleep study they will probably send us home Wednesday on tube feedings and breathing monitors and then they will do surgery when she is bigger. If she has trouble during the sleep study then they will do jaw surgery and we will stay here for two weeks. Also, the ENT doctor said that he could not see an ear canal on her right ear so she more than likely will have hearing loss. Thanks so much for all of the support and prayers from everyone! Keep praying!

Love, Corin