Week 37 Back to the Hospital

OK, so I know a lot of you are wondering why we are back at the hospital all weekend. Well let me first say everything is ok and I'm sure it will get better. As previously mentioned in a prior note/blog Amarie was born with a syndrome known as Treacher Collins. This syndrome causes some physical abnormalities in one's facial structure. The severity of the distortions varies from person to person. In Amarie's case she has a recessed jaw. Meaning her jaw is small and it causes some trouble when she eats and tries to breathe at the same time. We have been feeding her every 2 or so hours, as one should do with a new born. Every time we feed her she snorts and sometimes the milk or formula protrudes from her nose. This is because she is not swallowing properly due to her recessed jaw. In other words it is difficult for her to swallow properly. We discovered this during our appointment with a lactation specialist. The specialist referred us to the pediatrician who referred us to the emergency room at Children's Health Care in downtown Atlanta. So we have been here since Friday night. Amarie is doing well. They had to place a feeding tube down her nose and into her stomach to ensure she digests the milk properly. The primary concern was the milk was going into her sinus and lungs, which puts her at risk of infection. We are going to see a geneticist tomorrow who can give us further counsel. Any prayers and encouraging words are greatly appreciated. Thank you all. 

-Robert J. Orean

for more information check out oreanfamily.blogspot.com